Why 37days?

2010-07-16 09.48.46 The First Night

 The worst thing about death must be
          the first night.

                    —Juan Ramón Jiménez

Before I opened you, Jiménez,it never occurred to me that day and nightwould continue to circle each other in the ring of death,

but now you have me wonderingif there will also be a sun and a moonand will the dead gather to watch them rise and set

then repair, each soul alone,to some ghastly equivalent of a bed.Or will the first night be the only night,

a darkness for which we have no other name?How feeble our vocabulary in the face of death,How impossible to write it down.

This is where language will stop,the horse we have ridden all our livesrearing up at the edge of a dizzying cliff.

The word that was in the beginningand the word that was made flesh—those and all the other words will cease.

Even now, reading you on this trellised porch,how can I describe a sun that will shine after death?But it is enough to frighten me

into paying more attention to the world’s day-moon,to sunlight bright on wateror fragmented in a grove of trees,

and to look more closely here at these small leaves,these sentinel thorns,whose employment it is to guard the rose.

-Billy Collins

My friend Nina died today. She had Lou Gehrig's disease, or ALS. If there is a crueler disease, please don't tell me about it right now.

Nina wanted me around more and more as she navigated this disease, as she quickly lost the ability to walk, to talk, to swallow because, as she told me in one of the thousands of notes on yellow legal pads she wrote to me as her speech failed her: 1) I didn't look at her with a sad woeful face every time I saw her; 2) because I calmed her down when she panicked and 3) because I didn't panic when she choked on her own saliva but acted, instead, like it was the most normal thing in the world and in fact, like I did it all the time too. She also liked me because I made her laugh. Unfortunately she often laughed so hard that she choked on her own saliva, see point #3, above.

I love her for too many reasons to number.

Nina wrote a book about professional boundaries in the healing arts that is considered a classic. It is used as a textbook in many, many programs for massage therapists and other bodyworkers. She told me when the third edition came out recently that it is the thing she was most proud of in her life.

When the funeral home came for her body, I had to stifle the urge to run away with her instead. Instead, I simply asked if she could be taken in her favorite comforter and cremated with it. I heard myself say, "It will make her feel better because it's poofy" and "She loved it and it will comfort her." Irrational? Perhaps. But I knew that tonight might be the loneliest for her and that her comforter would help.

No, that's not actually it. Tonight I realized that Nina is fine, romping through fields of gold carrying what that comforter represents, flying and soaring and, as my friend Kathryn Ruth Schuth said, most likely laughing her ass off (and without an ounce of choking, I might add). This poem isn't about the person who died, is it? Tonight will be the loneliest for me, not for Nina. The worst thing about death must be the first night for those of us left behind looking at the significant, rending holes left by their departure. I have cried myself into a headache, I am bereft. I am different. I am exhausted. And I am deeply honored to have been invited in.

May Nina's life and death remind me to look more closely here at these small leaves, these sentinel thorns, whose employment it is to guard the rose. I will write more about these past few extraordinary sleep-deprived and love-fueled days soon. There has been much, much learning. For now, I must deeply sleep and simply honor this extraordinary human.

Nina, I love you dearly. Hold my snake, Goober. "F" to the 6th Power. Thank you for inviting me in.

  • http://www.nawhc.com Anna Garrett

    I am so sorry for your loss. As I mentioned on your FB page, your sharing of this journey has truly been a gift to all of us. Bless you for being the kind of friend we all hope to have.

  • Bridget

    I am so very sorry, Patti.

  • http://www.robynvickers.com Robyn

    Oh Patty. I’m so sorry for your loss. I’m anxious to read what’s to come.

    Twelve years ago, my best friend passed away at 29 from breast cancer. I was honored to have been there with her family to send her on her way to the fields of wildflowers she’d been journaling about. That moment ranks up there with the birth of my children as the most profound of my life.

  • http://www.facebook.com/sdealfitzgerald Suzanne Deal-Fitzgerald

    I strive to be the kind of person that a dying friend would call, to hold his or her hand and they go into their new place.

  • http://www.hiroboga.com/blog Hiro Boga

    Oh, Patti, I am so sorry you’ve lost your friend. Holding you in the softness of whatever gives you comfort right now.

    Much love to you,

    Hiro

  • http://www.myveryeducatedmother.blogspot.com Erin

    I’m speechless. This is such a powerful and moving moment in life and I don’t think it could have been better expressed. Thank you for sharing and putting into words what is so utterly wordless. My thoughts are with you.

  • http://tiffanyd22.blogspot.com Tiffany

    I am so sorry for your loss. I lost someone very close to me from Lou Gehrig’s disease almost a year ago. It is a terrible disease, but I am sure your friend appreciated all you have done for her.

  • http://www.talktherapybiz.com Linda

    What a beautiful way to make meaning from Nina’s untimely death.

    How beautiful that you requested her comforter to be cremated…

    I’ll say a prayer to many different higher powers tonight in her memory.

    May you have a restful night of sleep.

  • Rebeca

    You express it so well, Patti, the painful gift of death. When the window opens and it is so much bigger and brighter than you could ever have imagined. That profoundly bittersweet moment of grace when you realize that it is you who has been lost – and your loved one has been found.

    Thank you for sharing your intimate journey with Nina. Feel my arms around you. Blessings and candles.

  • http://www.becomingwhoyouare.net Hannah

    I’m so sorry to hear about what’s happened Patti :( I think you’re right – death is the most tragic of all things but it’s hardest for the people who are left behind. Wishing you a restful period of recovery, relaxation and reflection.

  • http://smallsteps2giantleaps.blogspot.com Peggy

    Patti, how very beautiful, the way you honor Nina and your friendship. My heart hurts for you. Sleep well, revel in your beautiful friendship that will never die, and know that you now have one more angel watching your back!

  • http://www.moreinyou.com Laura Neff – Life Leadership Coach

    Thinking of you today, Patti, as you begin to navigate the world without Nina’s physical presence. Big hugs from Charlotte.

  • http://www.cradlearts.org Scott Walters

    Blessings. For some people, reading can be a comfort. I’d like to recommend Wendell Berry’s beautiful short story “Fidelity” in the collection by that name. It, too, is about death within a loving community. I have a copy of the book if you want it.

  • http://www.dreamgardencoaching.com/blog Liz

    Patti- Nina sounds like a remarkable woman, and even though I know only this tiny bit, I can see that the fabric of the universe has a hole in it today.

    Hugs to you as you navigate the first night, and the first day…

  • http://writingwithoutpaper.blogspot.com Maureen

    To be held as you hold your friend is the greatest of honors.

    Namaste.

  • Renee Hopkins

    Oh Lord, you are so right. It’s that first night. My mom passed away six months ago, early in the morning, and that first day and first night are still surreal in my mind. I hope you’re doing well, Patti. My heart goes out to you in your grief.

    Renee Hopkins

  • jasper

    My mum died of A.L.S. and this story dragged me back to the last few days of her life. I sit here crying because even years after the death of someone you love, it can feel like the first night or the first day all over again.

    My sister and I spent more than a year looking after our mother after she was belatedly diagnosed with the horrible disease. She wanted to die at home with her girls and her cats.

    She knew that she was not alone and that she was loved every single step and misstep of our voyage through the final months of her life.

    She also knew where she was going in the final few days of her life. She began to ‘see’ her mum and dad and her aunts and uncles. They were singing the old Scottish tunes of her childhood, waiting for her.

    My sister and I told her to call out to her dad so that he would come and get her. In time, he did come and find her.

    She was carried away from those who loved her at the end of her life to those who had loved her at the beginning. She was carried away from the sound of a breathing machine to the sound of songs whose words she knew by heart.

  • http://www.kathrynjennex.com Kathryn

    Death and Grief are about the living. We need to better frame this so people can learn they don’t have to go underground to grieve.

  • http://chanasorel-time.blogspot.com/ Chana

    The poem you selected is beautiful. One of the greatest gifts we can give to people is to be present with them as they transition from this world to the next.

  • http://www.inkgrrl.com inkgrrl

    My deepest condolences for your loss – may your memories of her and the friendship you will always carry with you bring more laughter along your journey than tears. Thank you so much for sharing this. Your gift honors Nina and all of us as well.

  • Julie Haas

    May we all have someone like you at our sides when it is our time to move on. Now I hope you will let someone buy you a delicious cup of tea and hold your hand for a little while.

  • http://furrydancecats.blogspot.com Teri and the cats of Furrydance

    Oh, that first night. Seems no matter how many years pass, just thinking about it makes the earth fall away beneath my feet. Still, we can count ourselves to be blessed to have shared part of our life with someone so dear…beloved.

    Thank you for sharing and taking us on your journey…it all helps heal.

  • http://profile.typepad.com/karenswim1 Karenswim

    Patti, my deepest condolences on the the loss of your friend. I was led here by a post on Confident Writing and am so glad I clicked the link. Your beautiful remembrance laid bare that moment that of loss, the emptiness,the irrational yet seemingly perfectly sane things we say and do and the loss that is so utterly and deeply felt that it weighs us down making it difficult to breathe. May those we have loved and lost rest in peace and may we all honor their memories as beautifully as you have Nina’s.

  • http://profile.typepad.com/michelleward michelleward

    your heartfelt words have woven a terrific tribute….you have shared loss in a way that helps accept our own losses…and you have clearly made a case that She Matters. thank you for giving us this, at such a difficult time. {hugs}

  • http://catchingcourage.com Cathryn Wellner

    You made Nina live for us, all the while she was slipping away. A piece of her will live on in each of our hearts because of your fierce friendship. What a hard loss.

  • jylene

    a beautiful post. you are really a most extraordinary woman and an amazing friend.
    yes, ALS is quite cruel. i am watching a friend slip away with it right now. just heartbreaking…
    and as you did with nina, i look at him as i always have, and try to laugh together as much as we can.

 
view previous posts in the blog archive